I hope you have a great weekend!
Thursday, September 17, 2009
"The sun'll come out tomorrow so you gotta hang on till tomorrow, they'll be sun!" ...probably not though
Thursday, September 10, 2009
New Treatment plans..
I hope you have a great weekend!
"The LORD will fight for you; you need only to be still." Exodus 14:14
"The LORD will fight for you; you need only to be still." Exodus 14:14
“Even to your old age and gray hairs I am he, I am he who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you.” Isaiah 46:4
Monday, September 7, 2009
2 New Doctors
Wednesday I'm going to a new doctor in Seminole. It is a crazy week!
Yesterday at church we had a great lesson about this chapter in Isaiah. It's kinda long but I recommend you read the whole thing!
"The desert and the parched land will be glad;
the wilderness will rejoice and blossom.
Like the crocus, it will burst into bloom;
it will rejoice greatly and shout for joy.
The glory of Lebanon will be given to it,
the splendor of Carmel and Sharon;
they will see the glory of the LORD,
the splendor of our God.
Strengthen the feeble hands,
steady the knees that give way;
"The desert and the parched land will be glad;
the wilderness will rejoice and blossom.
Like the crocus, it will burst into bloom;
it will rejoice greatly and shout for joy.
The glory of Lebanon will be given to it,
the splendor of Carmel and Sharon;
they will see the glory of the LORD,
the splendor of our God.
Strengthen the feeble hands,
steady the knees that give way;
say to those with fearful hearts,
"Be strong, do not fear;
your God will come,
he will come with vengeance;
with divine retribution
he will come to save you."
"Be strong, do not fear;
your God will come,
he will come with vengeance;
with divine retribution
he will come to save you."
Then will the eyes of the blind be opened
and the ears of the deaf unstopped.
and the ears of the deaf unstopped.
Then will the lame leap like a deer,
and the mute tongue shout for joy.
Water will gush forth in the wilderness
and streams in the desert.
and the mute tongue shout for joy.
Water will gush forth in the wilderness
and streams in the desert.
The burning sand will become a pool,
the thirsty ground bubbling springs.
In the haunts where jackals once lay,
grass and reeds and papyrus will grow.
the thirsty ground bubbling springs.
In the haunts where jackals once lay,
grass and reeds and papyrus will grow.
And a highway will be there;
it will be called the Way of Holiness.
The unclean will not journey on it;
it will be for those who walk in that Way;
wicked fools will not go about on it.
it will be called the Way of Holiness.
The unclean will not journey on it;
it will be for those who walk in that Way;
wicked fools will not go about on it.
No lion will be there,
nor will any ferocious beast get up on it;
they will not be found there.
But only the redeemed will walk there,
and the ransomed of the LORD will return.
nor will any ferocious beast get up on it;
they will not be found there.
But only the redeemed will walk there,
and the ransomed of the LORD will return.
They will enter Zion with singing;
everlasting joy will crown their heads.
Gladness and joy will overtake them,
and sorrow and sighing will flee away. " Isaiah 35
everlasting joy will crown their heads.
Gladness and joy will overtake them,
and sorrow and sighing will flee away. " Isaiah 35
Saturday, September 5, 2009
Laughter is the Best Medicine
These are some funny things about everyday life with Lyme. You have to learn to laugh at all the silly things that come along with being sick.
"You Might Have Lyme if...
-You know what LLMD (Lyme Literate Medical Doctor) means, and you have one.
- At an appointment with your LLMD the nurse has asked why you are "all dressed up" when you wore sweat pants without holes in them instead of PJs to your appointment.
- Showering is a two hour process with a three hour recovery period.
-Some days are "shower-optional".
-The happiest day of your life was the one when you were diagnosed with Lyme.
-When you were diagnosed with Lyme you cried, shouted, or hugged your LLMD (which was slightly awkward for both of you).
-They know you by name at your local ER.
-You have more pills in your closet than a drug dealer.
-Your pain management specialist has informed you that your regiment of painkillers should be enough to tranquilize a horse, but they have little to no effect on you.
-You can't sleep even though you're always exhausted. See above for horse tranquilizer dilemma.
- The list of foods you CAN'T eat is longer than the list of foods you can.
-Your BMI is so low that you legally couldn't be a runway model in approximately ten countries.
-You have mysterious bruises, despite spending the majority of your day in bed.
-You (or your mom, dad, or caretaker) has come thisclose to having a fist-fight with a nurse or doctor who wasn't being sensitive enough to your needs.
- At an appointment with your LLMD the nurse has asked why you are "all dressed up" when you wore sweat pants without holes in them instead of PJs to your appointment.
- Showering is a two hour process with a three hour recovery period.
-Some days are "shower-optional".
-The happiest day of your life was the one when you were diagnosed with Lyme.
-When you were diagnosed with Lyme you cried, shouted, or hugged your LLMD (which was slightly awkward for both of you).
-They know you by name at your local ER.
-You have more pills in your closet than a drug dealer.
-Your pain management specialist has informed you that your regiment of painkillers should be enough to tranquilize a horse, but they have little to no effect on you.
-You can't sleep even though you're always exhausted. See above for horse tranquilizer dilemma.
- The list of foods you CAN'T eat is longer than the list of foods you can.
-Your BMI is so low that you legally couldn't be a runway model in approximately ten countries.
-You have mysterious bruises, despite spending the majority of your day in bed.
-You (or your mom, dad, or caretaker) has come thisclose to having a fist-fight with a nurse or doctor who wasn't being sensitive enough to your needs.
-You bribe your home nurses with candy so they'll show up on time and keep the poking to a minimum.
- You cry if you have to go away for the night and realize when you get there that you forgot to pack the Glad Press 'n Seal wrap. (for showering with the PICC line)
-You have a PICC line, and were initially paranoid about keeping it sterile when the doctor who put it in told you a bunch of horror stories about sepsis, but now you don't even usually remember to cover in in public.
-You are totally un-phased by people staring at you in public. You suspect it might be due to your wheelchair, PICC line, Michael Jackson style surgical mask or something, but who really knows?
-You laugh when you and another Lyme friend simultaneously have to go to the ER, and swap amusing stories when you get back.
-Your favorite day of the week is "dressing change day" and you (politely) demand that your nurse scratch your arm with gauze for as long as possible.
-You can't watch commercials because of the sudden changes in light and noise, and you think that sort of thing should probably be illegal.
- Your friends no longer think its odd for you to randomly burst out laughing and/or sobbing.
-You've also devised tricks to scam your insurance company to pay for rejected medications.
-Your LLMD is programmed in your phone and under recent calls all too often.
- Your nurse gives you her personal cell number, and calls you just to chit chat.
-You look forward to having wheel chair races with the next person up to the challenge!
- You cry if you have to go away for the night and realize when you get there that you forgot to pack the Glad Press 'n Seal wrap. (for showering with the PICC line)
-You have a PICC line, and were initially paranoid about keeping it sterile when the doctor who put it in told you a bunch of horror stories about sepsis, but now you don't even usually remember to cover in in public.
-You are totally un-phased by people staring at you in public. You suspect it might be due to your wheelchair, PICC line, Michael Jackson style surgical mask or something, but who really knows?
-You laugh when you and another Lyme friend simultaneously have to go to the ER, and swap amusing stories when you get back.
-Your favorite day of the week is "dressing change day" and you (politely) demand that your nurse scratch your arm with gauze for as long as possible.
-You can't watch commercials because of the sudden changes in light and noise, and you think that sort of thing should probably be illegal.
- Your friends no longer think its odd for you to randomly burst out laughing and/or sobbing.
-You've also devised tricks to scam your insurance company to pay for rejected medications.
-Your LLMD is programmed in your phone and under recent calls all too often.
- Your nurse gives you her personal cell number, and calls you just to chit chat.
-You look forward to having wheel chair races with the next person up to the challenge!
-Your sister goes to get her picture taken and someone says “say cheese” but she says “ LYME DISEASE!” instead.
- You could probably draw your own blood. And instruct the nurses which vein to use.
-When you can read your blood work better than your PCP, nurses, and most medical students.
-Going to the doctor is considered an outing.
-You are able to diagnose other Lyme patients before 20 specialists can.
Add LOTS more, everyone! Every case of Lyme is different, some are more severe than others, but I hope we can all have a giggle about its quirks while we're working to get well. We can beat this! Hope this puts a smile on your face!"
"He will once again fill your mouth with laughter
and your lips with shouts of joy." Job 8:21
Friday, September 4, 2009
Hard Week
Flushing it with saline
All hooked up to an IV.
Flushing it with heparin. Tuesday, September 1, 2009
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