Showing posts with label port. Show all posts
Showing posts with label port. Show all posts

Friday, October 8, 2010

Happy 1st Birthday!

A year ago on Wednesday I had surgery to have a port put in my chest. This port has been great! It's been through a lot in it's short life.
It's been through...
  • a traumatic transplant into my body during surgery. It was not happy about that and boy did it let me know afterwords!
  • weekly needle stabs right in the middle of it
  • never ending blood draws from it
  • too many IVs and different medicines to count going into it
It's gone places that some people never get to go to...
  • Nevada- it got a needle stuck into it everyday for 2 weeks straight
  • Brazil and Argentina!- it was just along for the ride!
  • Florida- it got to go on vacation with us, but it got used for IV fluids several times
  • And Tennessee, Texas, Arkansas, California
We've been through a lot together, my port and I. Even when I say goodbye to my port, I will always have a reminder of it. I will always have a beautiful scar.

Tuesday, September 21, 2010

Things to do while getting IVs!

Yesterday I finally got my IV supplies delivered! The last time I had my port accessed was when I was in the hospital for gallbladder problems a week before my surgery. Usually I do IVs 3 times a week but I haven't done any since my surgery. I just didn't want the IV fluid to come spilling out of my incisions because that happens a lot you know. Just kidding, I just kept forgetting to order them. You have to flush the port often to make sure it doesn't get a blood clot. So my mom accessed my port yesterday and I did an IV! I left the needle in my port overnight so that I could do another IV tonight. The IV can take anywhere from 2 to 4 hours. It just depends!
Of course you have to make IV time fun! Here are some things you can do...
You can...leave the IV pole and machine in the living room and just carry the bag while you take medicine!
You can...again leave the pole in the living room because it doesn't roll very well and just hang it on the cabinet door handles over the oven or refrigerator while you cook up a delicious treat.
I mean, who doesn't hang an IV bag there?

You can... play wii with your brother! But you have to be very careful not to rip your IV out while doing intense moves. That would not be good and would guarantee a field trip to see my nurse friends at the hospital.
Notice Squirt (my IV pole obviously) on the left. They shortened the length of the IV tubing so I had to be extra careful and stay close to Squirt.

haha look at Landon's face


You can...take a stroll to the mail box and watch the faces of the people driving by. Then you wave and smile and wonder why they have that weird look on their face. Oh maybe it's because I'm hooked up to an IV...at my house.
You can... have your family bring you anything that you want because it's "too hard" to get things for yourself while hooked up to an IV machine. Make sure and really take advantage of this one!
You can...try to hypnotize yourself by watching the IV slowly drip...
You can...try to beat your record on how fast you can get to the bathroom with your IV pole and machine. Let me tell ya, it's not easy. Those rugs get in the way!
See, IV time doesn't have to be completely boring! I'm sure I'll come up with new things to do! Let me know if you have more ideas!

Tuesday, March 16, 2010

The process of accessing my port

This is the heart monitor that I wore for a little over a month! The cell phone had to stay with me at all times because the heart monitor sends it's information to a computer through the phone. Alarms would go off all the time for no reason. I put those circles on my stomach and chest and then attach the wires to them. I'm allergic to the circular pads which meant I had hives those wonderful 5 weeks!

My port is on the right side of my chest (opposite of my heart). You can actually see the tubing that goes from my port to my neck and then to my heart. You can see it right under the skin.
The port is attached and tied to the muscle in my chest. My mom and I had to go through training to be able to access the port at home by ourselves. Obviously this is taken very seriously since we are putting a 1 inch needle in my chest, that connects to my heart and has to be completely sterile. This procedure is not taken lightly.
First my mom puts on a mask and gloves. They aren't sterile gloves for this part. The first thing we do when accessing my port is cleaning the skin in a circular motion with three different sterile clothes with the Hydrogen Peroxide.
Sterile pads and Hydrogen Peroxide


While that dries we prime the needle. That means that you take the needle connected to a line and push saline through the line to get all the air bubbles out. You can only touch the end opposite of the needle because the needle has to stay sterile.

Priming the needle


The syringe on the left is the saline that we prime the needle with. When I'm done with an IV and the needle and line is still in, I take the syringe of saline and flush the line again. Then I take the syringe on the right and flush it through the line. The syringe on the right is Heparin. That is the most important part to make sure that I don't get a blood clot in my port and line.





Once we prime the needle and the Hydrogen Peroxide dries, we take 3 more sterile cloths and clean the skin with Alcohol in a circular motion.

While the Alcohol dries, my mom switches from regular gloves to sterile gloves. There is a certain way to put on gloves so that it is completely sterile.



Once the sterile gloves are on, she carefully picks up the needle and line. Then she grabs my port on both sides with one hand and pushes the 1 inch needle in my port with the other hand. She has to push very hard because it has to go through the skin and a mesh material to get into the port. Once she thinks she's in she takes the syringe of saline and puts a little saline in and then pulls back on the syringe to see if the needle is in the port. When she pulls back we are looking for blood return. All that means is that when she pulls the syringe back, blood should come out, meaning that the needle is in place! If we don't get blood return, that means that the needle isn't in the port, which means you start all over! In the actual port, there is blood that just sits there. That is why the Heparin(blood thinner) is so important.
This is a diagram on the port. You can see how far the needle has to go to get into the port. As you can see it shows the needle a little outside of the skin. The needle isn't flat on your skin. Part of the needle just sticks out! It's weird. The IV goes through the needle, into the port, all the way through the catheter, into a big blood vessel (the jugular vein) and straight to my heart.


Here is my mom putting the needle in. You have to grab the port by the sides and push really hard to get the needle in. You can see how much the needle sticks out of my skin.


Here's the needle in with the tube that connects to the IV or whatever you put in your port. Once we get blood return we put a dressing over the needle and port to make sure it all stays sterile and holds the needle in.

Once I'm done with the IV and I flush it with saline and Heparin, my mom puts on new sterile gloves and we take the dressing off the port, my mom grabs the port again and applies pressure and pulls the needle out. You have to pull really hard to get the needle out since it is in several layers of things. When you put the needle in and take it out, you have to make sure and hold the port firmly or the port will flip over and move around and that would obviously be horrible!
This is all the mess after accessing my port!
That is the whole process! I do this about every other day! There is no easy or quick way to access my port. This is what we have to do every time.
Sometimes I leave the needle in longer than a day if I am going to do an IV two days in a row. It can't get wet which is a challenge. I don't like to leave it in though because the needle hurts all the time when it is in. When you're in the hospital they can leave the needle in up to 5 days but then they have to do this process all over to put a new needle in. The longer you leave it in, the greater risk there is for infection.

This is an IV bag and the tubing. I can start my own IVs which is good!


Wednesday, December 9, 2009

So many appointments

There has been a lot of medical things to figure out lately. I am probably forgetting something but hopefully I'll remember everything that has been going on. Last week at my pain management appointment we mostly discussed my heart rate problems. They asked if I had the heart problems before my port. I said no and they explained that the port goes from my right chest, up to my neck through the jugular vein and down straight to my heart. If the port is too long it can actually kinda stab into your heart and irritate it. So I had some xrays done at the hospital to see if my port was too long. They said it would be easy to fix so we were hoping that was the problem.
We called them back today and they said that my port is fine..
We talked to my Lyme doctor in Nevada yesterday and he said that if it is not the port, then there could be a couple things going on. The Lyme could be really getting inside my heart and attacking it, causing the fast heart rate. Or I could have an infection in my blood causing the fast heart rate and nausea. He wants me to go to my primary care and have a blood culture.
I'm still taking the Neuronton (the anti-seizure medicine) and I hate it so much. The pain management doctor wants me to stay on it. I also go to the sleep doctor tomorrow so we'll see what he says about that. I take it when I get up and when I go to sleep so I just feel out of it and confused all the time. I feel like I'm in a dream. I don't think there are any other options though so I guess I'll have to stay on it.
On a happier note, my family is going to Destin, Florida for Christmas! We are renting a house right on the beach. I'm so excited! My grandparents and aunt are going with us too!
Christmas is so soon! I'm getting excited!


"Though the fig tree does not bud
and there are no grapes on the vines,
though the olive crop fails
and the fields produce no food,
though there are no sheep in the pen
and no cattle in the stalls,

yet I will rejoice in the LORD,
I will be joyful in God my Savior.

The Sovereign LORD is my strength;
he makes my feet like the feet of a deer,
he enables me to go on the heights." Habakkuk 3:17-19

Wednesday, October 28, 2009

Praise the King

My mom just accessed my port without a nurse helping! So I am done with home care nurses!! I have had a home nurse for the past 7 months. I love them, but I'm glad to be free from them! Today we are leaving my port accessed for a few days so that I don't have to have the needle put in every time I need to do an IV.
This week has been good so far! I went to a Bible study Monday night, and yesterday I got to get out of house after I finished some school work.
At the Bible study we were challenged to have conversations that achieve righteousness, love, and grace. We were also challenged to start sharing what God is specifically been doing in our lives. We are really blessed, but never really tell anyone what God is doing right now in our lives. These are a couple of verses from the Bible study.
"We put no stumbling block in anyone's path, so that our ministry will not be discredited. Rather, as servants of God we commend ourselves in every way: in great endurance; in troubles, hardships and distresses; in beatings, imprisonments and riots; in hard work, sleepless nights and hunger; in purity, understanding, patience and kindness; in the Holy Spirit and in sincere love; in truthful speech and in the power of God; with weapons of righteousness in the right hand and in the left; through glory and dishonor, bad report and good report; genuine, yet regarded as impostors; known, yet regarded as unknown; dying, and yet we live on; beaten, and yet not killed; sorrowful, yet always rejoicing; poor, yet making many rich; having nothing, and yet possessing everything."
2 Corinthians 6:3-10

"But just as you excel in everything—in faith, in speech, in knowledge, in complete earnestness and in your love for us—see that you also excel in this grace of giving"
2 Corinthians 8:7
"Be wise in the way you act toward outsiders; make the most of every opportunity. Let your conversation be always full of grace, seasoned with salt, so that you may know how to answer everyone." Colossians 4:5-6
I have gotten a lot done this week! I actually get to go to church tonight!! I haven't been to Wednesday night church in FOUR WEEKS. I have missed it so much.
Praise the King by Cindy Morgan
"Praise Him in the morning
For tall and lofty trees
And praise Him in the evening
For children on their knees
Oh and praise Him in the noon day
For gentle birds that sing
Oh praise Him all ye people
Praise the King
And praise Him for a peaceful porch
And rocking chairs that sway
Praise Him for the rolling hills
Where children laugh and play
Oh and praise Him for the wandering soul
That never lost their way
Oh praise Him all ye people
Praise the King
Chorus:
Praise the King
Praise the King
Let it ring
Praise the King
Praise the King
Praise the King
Let it ring
Praise the King
And praise Him for the blood that fell
And bloomed a rose that day
And praise Him that He suffered through the guilt, the grief, the shame
Oh and praise Him that His tender love will still forgive today
Oh praise Him all ye people praise the King"

Friday, October 23, 2009

Not what I expected...

It has been a long, hard week! Earlier this week my parents were up until 5am with me because I was so sick. We cancelled my appointment with the sleep doctor since I was sick.
Today my home care nurse came and accessed my port for the first time. It has to be very sterile. You clean the port site with betadyne and alcohol first. Then you grip the port with one hand and stick the special needle in with the other hand. The needle is 3/4 of an inch long and is bent at a 90 degree angle. The needle doesn't go in all the way so part of the needle is just out of the skin. After that you put a dressing over the port so that the needle doesn't come out. Connected to the needle is a tube that you flush the port with and then hook up the IV. Once the IV is done, you flush the line with Heparin and then take the dressing off and pull the needle out.
Today the nurse pulled the needle out and we forgot to flush it was Heparin. So we had to do the whole process AGAIN. It was frustrating.
I'm supposed to get a numbing cream to put on the port site 45 minutes before we access it to help with the pain. I didn't have the numbing cream today and it really hurt. It's not like a normal needle prick. It's not what I expected. Pulling the needle out hurts a lot too. It's just weird and painful.
My mom is learning how to access it so that we won't have to have a nurse come every time. They said we're only supposed to access it 2 times a week. I have to do an IV at least 3 times a week. That means that we are going to have to leave my port accessed for a few days at a time. When the port is accessed, that means that the needle with the tubing is still in and there is a dressing on it. So I won't be able to shower when it's accessed because it can't get wet at all. It is going to take some time to get used to because it feels really weird while the needle is in. I will have to be very careful while it's accessed since part of the needle sticks out. They said that I'm supposed to just tape the tubing to my skin so that it doesn't pull the needle out.
My friend found this Halloween IV bag!! It has fake blood in it and you can drink it! haha I love it!!

Here is what it looks like when my port is accessed. The needle is in the center of the port.


Tonight I get to go to a bonfire at the lake with the youth group girls! I'm really excited!! It will be the first time I have gotten to leave the house this week.
We also decided that we can't go to Disney World right now. So we finally cancelled it.

"The LORD is my strength and my shield; my heart trusts in him, and I am helped. My heart leaps for joy and I will give thanks to him in song."
Psalm 28:7
Whatever Your Doing by Sanctus Real
"It's time for healing time to move on
It's time to fix what's been broken too long
Time to make right what has been wrong
It's time to find my way to where I belong
There's a wave that's crashing over me
And all I can do is surrender

(Chorus)
Whatever You're doing inside of me
It feels like chaos but somehow there's peace
It's hard to surrender to what I can't see
but I'm giving in to something Heavenly

Time for a milestone
Time to begin again
Reevaluate who I really am
Am I doing everything to follow Your will
Or just climbing aimlessly over these hills
So show me what it is You want from me
I give everything I surrender...

Time to face up
Clean this old house
Time to breathe in and let everything out
That I've wanted to say for so many years
Time to release all my held back tears

Whatever You're doing inside of me
It feels like chaos but I believe
You're up to something bigger than me
Larger than life something Heavenly

Whatever You're doing inside of me
It feels like chaos but now I can see
This is something bigger than me
Larger than life something Heavenly
Something Heavenly


It's time to face up
Clean this old house
Time to breathe in and let everything out"