Showing posts with label Lyme politics. Show all posts
Showing posts with label Lyme politics. Show all posts

Monday, January 24, 2011

Lyme Disease in Oklahoma

I'm working on an update to post. I had to go to the hosptial on Saturday night and I'm really sick but I'll try and post soon.
This weekend we saw that the Oklahoma State Department of Health changed their info about Lyme Disease. They just hired a new director, so maybe this will change things. You can read the article here.
This is what my dad said about it on facebook.
"Great news! After years of fighting with doctors and health "professionals" about our daughter's diagnosis of Lyme Disease because "it doesn't exist in Oklahoma," the OSDH now says it does! Docs who treat late stage Lyme have been run out of practice and out of Oklahoma - so we STILL have to leave the state to get care from experienced, knowledgable Lyme docs. But this is a victory for those suffering this terrible disease!"
In the article it says, "However, other evidence suggests that it could be possible to get Lyme disease in Oklahoma".
They are starting to see the light! So now, if any doctor here tells me that it's in my head and that I can't have Lyme, we can show them this article and they can't deny me. I want to go to all the doctors who have been so rude to me and just show them this. Maybe all we're doing to bring awareness is actually getting somewhere.

Wednesday, July 29, 2009

Lyme Disease Hearing

I have had a pretty good week! Last Thursday I started volunteering at the Lighthouse Medical Clinic. It's a clinic started by our church to help with inner-city families who might not receive health care. I am doing the filing for the clinic once a week for a few hours. It is a great ministry! I am really enjoying helping out there!
I've been able to get out of the house a lot lately which has been so great. I am feeling better and it's nice to be able to do some normal things in between all the shots and IVs. I'm still dealing with pain and fatigue, but I've been able to handle it for the most part. The big problem right now is me not being able to sleep. I'm up until 3 every night and some nights six. Sunday I went to church after only 2 hours of sleep. It was a rough day for me, but I'm glad I went. It's very frustrating and tiring not sleeping. Those infomercials that are on all night every night are getting really annoying... I mean seriously, who is going to buy a nose hair trimmer after watching a whole hour about it at 3 in the morning...not me! They were interesting at first, but every single night is a little too much for me!
Today there is a big Historic Hearing for Lyme Disease in Washington D.C. There are finally enough good doctors who are angry at all the doctors who don't think Lyme exsists in some states and who don't treat it properly. The hearing is to discuss treatment and how Lyme should be handled. We have been to so many doctors here that don't think Lyme exsists in Oklahoma and they aren't even open to talking about it. Most of the doctors we have called won't even take me because I have Lyme. It really is a huge political battle. Maybe this hearing will change their minds...something needs to happen.


"We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed. We always carry around in our body the death of Jesus, so that the life of Jesus may also be revealed in our body." 2 Corinthians 4:8-10

"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18