Sunday, September 25, 2011
On Monday morning we headed to the hospital around 5:15. When we got to the hospital, we were the only patients there! We filled out paperwork in the waiting room while laughing with the staff that was there. The hospital is arranged strange. The ORs are in the middle of the building. So to get from the waiting room to pre-op and recovery, you have to go up to the second floor to the back and then down to the first floor.
Once in pre-op my nurses came in and one of them was my nurse for my last surgery in December! It was really funny because she came in and said, "you all look familiar".
Then I said as I was laughing, "actually I have a picture of you from my last surgery...". We all started laughing so much! My grandparents knew the other nurse which was crazy!
Once they started my IV they gave me Tylenol through it. We didn't know that they could do that! It was just a bottle of Tylenol. They started me on IV antibiotics too.
The anesthesiologist came to talk to us and was very nice. He answered our questions and was great! I got 5 out of the 8 nausea medicines that I could get. They also gave me Benedryll during surgery to help counteract the reaction to the cleaning things they have to use before surgery.
A PA from my surgeons office was there too which was great! I've seen her a lot at the office if the main doctor is busy. She was in my last surgery too. The surgeon came in and everything was ready to go.
They didn't give me any kinda of relaxation drugs before they took me to the OR so I really remember it. I crawled onto the operating table while the nurses got everything ready. They put monitors all over me while we were talking. It seemed like I was awake forever! Then my hand started to burn where the IV was and I started getting sleeping. That's all I remember!
The surgery was a little over an hour. I woke up in recovery hurting so much. Usually my parents are allowed to come back when I'm awake, but they wouldn't let them this time. I kept asking where my parents were and why I couldn't see them. The anesthesiologist came back in to adjust some meds because I was hurting a lot.
I started feeling better and asked for a coke. The nurse brought me one and I started to drink it. She left the room again real quick and I decided I needed more to drink, so I started to pour the coke from the can into the cup. The problem was that there was a lid on the cup and I didn't realize that...so she comes back in to me pouring the coke everywhere...I think I started crying and apologizing. She was laughing and now I laugh at it! I can just see myself doing that.
I got dressed and then was taken out to meet my parents at the car. We got home sometime mid morning I think. I slept a lot on Monday when I got home.
I'm doing well right now. I'm still swollen and have little rashes from where they had to use cleaning things that I'm allergic to. Yesterday and today I walked a little. I'm still having pain, but it's only been 6 days since surgery so it will take time. I can mostly get up on my own now, but sometimes still need help. It's a workout just to get up!
In the surgery, they found endometriosis and took all that out. I have 3 incisions from this surgery. We could not be happier with the nurses at that hospital and my surgeon! They are wonderful.
I'm so thankful for all your prayers. Please keep praying that I will continue to get stronger and pain free.
Saturday, September 24, 2011
Monday, September 19, 2011
Sunday, September 18, 2011
Here are a couple of verses that I'm taking comfort in.
Friday, September 16, 2011
This weekend I am going to get everything ready for surgery. I need to pack things from my dorm room and take them home since I'll be staying there while I'm recovering. I'll post again before surgery and then hopefully my parents can update my blog when I'm out of surgery and everything.
I hope you have a relaxing weekend!
Monday, September 12, 2011
1. The illness I live with is: Lyme Disease, Fibromyalgia, Babesiosis, Bartonella, Ehrlichiosis, and other infections
15. The hardest thing to accept about my new reality has been: the unknown and controversy about my disease. We have to make medical decisions because most doctors won't treat me. It's so hard to have a disease that the government says doesn't exist, therefore we have to stay under the radar with it. But that doesn't mean we don't spread awareness. Also, the fact that I spend the majority of my time hooked up to IVs, taking medicine, spending all day at the doctor in the in the hospital.
26. When someone is diagnosed I’d like to tell them: Do research for yourself and trust God. If you trust Him and His plan you can get through anything.
Thank you for reading and for your support and prayers.
Check out the invisible illness website to see how you can help.
Thursday, September 8, 2011
The surgery is Monday, September 19th (a week from Monday). I have to be there at 5:30am so I will be the first surgery of the day. It's an exploratory laparoscopy surgery, but my surgeon is pretty sure he knows what the problem is. I am also on the cancelation list, so if someone has to cancel their surgery, I will get their slot and have it sooner.
The surgery is the same as the one I had in December. I'm really ready to have it and get some pain relief. Until then, I'm trying to go to my classes and do all my homework. It's a little hard because of the pain medicine I'm on, but I'm doing okay.
This will be my 3rd abdominal surgery in a year. I'm going for a record! Just kidding.
I hope you all are having a great day.
Thursday, September 1, 2011
Last night we had a fire drill at 11:30pm. That was fun! Usually they don't tell you about fire drills and they are in the middle of the night, but they told us last night before it happened so it wouldn't freak us out with all the fires around here lately. There are still fires all over the state. You can see the smoke from miles and miles away. I'm not sure if they know what keeps starting the fires.
Some of the hardest things for me this week are from not being in school in 3 years. And actually I missed a lot of my freshman year too. We are expected to take notes, know where to find the homework assignments even when the teacher doesn't say anything about it in class, and just be more independent. Most people learned all of that in high school. I pretty much went from 8th grade to college, and it's been very difficult! I'm sure it will get easier, but it will take a while. I've never had to take notes, so I'm learning how to do that.
One of the best things about being at a Christian school is all the help you get. The teachers aren't just there for you in the classroom, but they are there for you in life and they want you to grow spiritually. They encourage you in ways that they might not be able to in a public school. It's nice to actually have teachers who want to know you and encourage you. So yes, I'm so lost in a lot of things in the classroom, but my teachers are great. They have been very understanding and want to help make this transition easier for me. I'm so thankful for that!
The best things about this week have been being able to be "normal". I get to see my friends everyday. I also get to go to school which I have missed so much! We watch a movie or tv shows together and hang out in each others rooms. My roommate and I have been going to bed at 10:30 most nights because we get so tired from everything! Lots of people are going to bed early right now! Curfew is at 12am. My roommate and I have known each other our whole lives! Our moms have been best friends their whole lives, and our grandparents have been too. It's working out very well and we are having a lot of fun! We have room check on Tuesdays where we have to clean and do specific things to our rooms. I love college and dorm life!
I also have so many great people working with me and informing my teachers of my situation. It's comforting to know that there are so many people here who have said that if I need anything at all, I can go to them!
I did have to miss chapel and Bible today because of a doctors appointment that couldn't be moved. The doctor gave me 3 options of what we can do next, so I'm thinking about it and discussing it with my parents. I will update whenever I have any new information about what we decide to do about the persistent abdominal pain.
Thank you for the prayers for all the people being affected by the fires! Please pray for direction for us as we decide what the next step will be as far as taking care of the abdominal pain. I'm not feeling very well, and have mostly been laying in my room except for going to class. I lost five pounds in two weeks which is not good, even though I've been eating normally. I think it's from all the pain and feeling sick. We are trying to decide what to do fast!
"Show me your ways, O LORD,
teach me your paths;
guide me in your truth and teach me,
for you are God my Savior,
and my hope is in you all day long." Psalm 25:4-5