Today I'm getting my 3rd PICC line. My veins have been used so much so they can't get an IV which is why I need the PICC line. I had a port for 4 years, my first PICC for 8 months, and my second PICC for a couple of months. I'm tired of being poked so many times to get an IV so I'm glad I'm getting a PICC line, but of course I wish I didn't need one but we don't have a choice since I have no IV access.
The procedure to put the PICC line in is at 1:30pm Nevada time which is 3:30pm Oklahoma time. They are going to try and sedate me a little so that I don't have seizures during the procedure.
The PICC line goes from the arm, all the way to the heart into a bigger vein like this picture shows. The procedure isn't painful, they numb you first and then use an xray and ultrasound machine to guide the line into the heart. It's just a weird feeling to feel it go through your veins as they get it in place!
I will update later today with how the procedure went! Thank you so much for all the prayers! God is good!
"When you go through deep waters, I will be with you. When you go through rivers of difficulty, you will not drown. When you walk through the fire of oppression, you will not be burned up; the flames will not consume you." -Isaiah 43:2
Day 1 at the clinic hasn't been boring! We started off with an EEG and it was able to determine the cause of my seizures. I started having back to back seizures at the clinic and they went on from about 10:30 am until 5pm and they finally stopped after many doses of medicines. Tomorrow I'm scheduled to get my 3rd PICC line because my veins are so bad. Please pray that the seizures stay away tonight and that the doctors will be able to come up with a treatment plan for these types of seizures. Please pray that my procedure to place my PICC goes well tomorrow. I have the best doctors here. They all held my hand during seizure after seizure and didn't leave my side. God is good! Thank you for your prayers!
My mom and I made it to Reno, Nevada! We get to have a day of rest tomorrow and then my tests and doctor's appointments start Monday morning! We had good flights, I had one seizure on one of the flights but thankfully it was just one. Tonight I'm thanking God for the safe travel and the opportunity to come out here to see these doctors and receive treatments! God is good!
Today my mom and I are leaving to go to Reno, Nevada where my Lyme doctor is! We will be there a couple of weeks while I receive treatments.
We are going to try and figure out more about my seizures. Since my last post, I've had 3 more ER trips because of seizures. Last Wednesday I was taken by ambulance because I was unconscious for so long after multiple seizures that wouldn't stop. They finally got them stopped in the hospital.
I thought I'd answer some questions I've gotten about our trip!
Are you flying or driving? We are flying. The drive is 24 hours without stopping and I just can't handle that right now.
Where are you staying? We are staying in a hotel in Reno that's close to the clinic.
How long will you be there? The plan is just a couple of weeks but we don't know for sure.
Why do you have to travel to Nevada for treatments? No doctors here in Oklahoma know anything about Lyme. When I was taken by ambulance to the hospital last week, the ER doctor was convinced I didn't have Lyme and therefore, he wouldn't treat me at all. He believes Lyme doesn't exist here, so he wouldn't treat me, even as I was seizing. So we left and went to another hospital where I was immediately taken to a room because they said they needed to stop my seizures ASAP, no matter the reason for them. The doctor actually treated me like a person and didn't want to argue the politics of Lyme.
Another reason we go to Nevada is because of the doctor that's there. He is so good and caring and so is his staff. My doctor will just randomly text or call to check on me! They are like family to us. When I was in the hospital last Wednesday, he called to check on me, even when he didn't have to. He is the most hard working, devoted doctor we have ever seen. He works long days just to try and help his patients. I'm so thankful for he and his staff!
I will try and update as much as I can while we're gone!
I have an EEG Monday morning and see my doctor after that and then see another specialist on Wednesday so we will be busy!
Please be pray for our trip and that we can stop these seizures! God is good!
"My flesh and my heart may fail, but GOD is the strength of my heart and my portion forever" -Psalm 73:26
Diagnosed with Late Stage Neurological Lyme Disease in 2008 after being sick for 2 years. It's now been 9 years since I was diagnosed and I am still fighting. I was diagnosed at age 15 and am now 24. In March of this year, I got sepsis from my port and almost lost my life from the infection and damage it caused. I was on dialysis for kidney failure, had liver failure, heart failure, a mass the size of a plum in my heart, a damaged heart valve, and so much more. I had open heart surgery on April 3rd, 2017 and have now had 4 more heart surgeries since then. Because of the extensive open heart surgery, my heart now relies on a pacemaker to beat at all. During the open heart surgery, they had to replace my tricuspid heart valve with a mechanical one. I've spent almost 3 months in the Heart Hospital since March/April. It's been very difficult, but God has a plan and He is always good! I will praise Him in this storm!