Thursday, May 27, 2010

One good reason for shots!

One of the shots I do is a desensitization shot for the Amitriptyline (sleep medicine that was possible what put me in the hospital a couple weeks ago). We think that medicine is what caused my heart problems. But the thing is, that is the ONLY medicine in the whole wide world that helps me sleep. Remember when I said I'm on enough medicine to tranquilize a horse and it did nothing to me? Yeah I still have that problem. So when I got off of the Amitriptyline in Nevada, my sleep went way down hill and it keeps getting worse. The past couple days have been really hard from the lack of sleep so we emailed my doctor in Nevada and asked if I could start the Amitriptyline again since I'm on the desensitization shots. He said yes!!!! We will really have to monitor my heart rate and rhythm though. Please pray that I will not have any of the serious heart problems again from the medicine. I am starting on a very low dose then working back up to the highest dose I can be on (Remember horse tranquilizing problem again). I need to sleep. I won't get better unless I sleep.
It feels like we just go in circles chasing one problem after another. I can't sleep so I'm put on sleep medicine. The sleep medicine causes heart problems. I'm put on heart medicine to help heart problems but those side effects turn me into another person, causing me not to sleep.
Just like when I can't sleep because I'm in pain. But when I don't sleep I'm in more pain which causing me not to sleep and so on....
This is how it is with EVERY problem I have and it's so frustrating. It's really hard to figure out if the side effects are worth it.
Yesterday I did so much! It was wonderful!!!! But at the end of the day, I started to crash. When I got home I got so sick. I started hurting so much and was nauseous. I was not a happy camper. It was not pleasant to be so exhausted but not able to sleep.
Today I'm in a lot of pain and just don't feel well at all. Not being able to rest or sleep is the worst thing in the world. It means you never get a break from anything.
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart." Jeremiah 29:11-13
I heard this song yesterday and it reminds me that God does have a plan for everything and that I am where I'm supposed to be, even when I wish it was different.
Our God is in Control by Steven Curtis Chapman
This is not how it should be
This is not how it could be
This is how it is
And our God is in control
This is not how it will be
When we finally will see
We'll see with our own eyes
He was always in control
And we'll sing holy, holy, holy is our God
And we will finally really understand what it means
So we'll sing holy, holy, holy is our God
While we're waiting for that day
This is not where we planned to be
When we started this journey
But this is where we are
And our God is in control
Though this first taste is bitter
There will be sweetness forever
When we finally taste and see
That our God is in control
And we'll sing holy, holy, holy is our God
And we will finally really understand what it means
So we'll sing holy, holy, holy is our God
While we're waiting for that day
We're waiting for that day
We'll keep on waiting for that day
And we will rise
Our God is in control
(Holy, holy, holy) x2
Our God is in control
(Holy, holy, holy)
Our God is in control
(Holy, holy, holy)

Tuesday, May 25, 2010

Awareness Necklace and random things

This will be a really random post because I just have a lot to talk about!
I've wanted to get some kind of awareness jewelry for a while and I decided to go to Hobby Lobby to see what I could find! I found a charm that says hope and an awareness ribbon charm. Lyme disease awareness color is a light green color so I put a couple beads with the charms! Now I have an awareness necklace!!

Here is one of the nastiest things I have ever tasted. Today I started this ultra meal stuff. It did not go well. First of all, why does it have such problem dissolving in water which makes it lumpy? Gross. As I tried to drink it, I started gagging and almost threw up several times. I plugged my nose and 20 minutes later had drank about 3/4 of it. By then I had had enough. I was full and it was disgusting. A few minutes after I was done drinking it, my stomach started hurting so bad and I felt horrible. I don't know what the problem is.

I've been feeling okay lately. Still not sleeping well.
My friends get out of school this week which is so exciting!!
Last night was the last Thirst Bible study. We went to someone's house and spread out along the property and spent an hour alone. Almost everyone I talked to said how fast it went! We practiced the disciplines we have learned or whatever else we wanted to. I will really miss the Bible study!
Three weeks from today my family and I will be on the way to Brazil!!! I'm so excited!
I'm planning on going to church camp and the mission trip this summer! It will be so much fun!
My medicines still haven't come in the mail yet from Nevada...aww how sad! :) I'm really enjoying the break! But I know I need to be on them.
As I was filling out paperwork for camp, there was a medical form of course. It just makes me laugh trying to fill that out! It gives you 2 lines to list the medications you are on. Good one! How about I list the medicines I'm not on!
This week I'm just hanging out with friends everyday! It's wonderful!
"Sing praises to God, sing praises; sing praises to our King, sing praises" Psalm 47:6

Monday, May 24, 2010

Shattered Dreams and Miracles

A couple months ago a friend suggested that I read a book called Shattered Dreams by Larry Crab. It was SO good and encouraging. Just like the title says, it talks about what happens when our world falls apart and our dreams are shattered. One of my favorite quotes from it was
" Shattered dreams open the door to better dreams, dreams that we do not properly value until the dreams that we improperly value are destroyed."
Once you've gone something so life changing, you understand that quote. When your world falls apart and you feel like you've lost so much that you can't go on, that is when you realize how much you actually need God. When we are so low, God uses that to show us that He is always there. But we have to watch and see what God is doing through those times. We can't just sit there and watch everything fall apart and hope God does something. Yes God meets us where we are, but we have to meet Him too.
"My eyes stay open through the watches of the night, that I may meditate on your promises" Psalm 119:148
A month after I read the book I heard this song.
Before the Morning by Josh Wilson
"Do you wonder why you have to,
feel the things that hurt you,
if there's a God who loves you,
where is He now?
Maybe, there are things you can't see
and all those things are happening
to bring a better ending
some day, some how, you'll see, you'll see
Would dare you, would you dare, to believe,
that you still have a reason to sing,
'cause the pain you've been feeling,
can't compare to the joy that's coming
so hold on, you got to wait for the light
press on, just fight the good fight
because the pain you've been feeling,
it's just the dark before the morning
My friend, you know how this all ends
and you know where you're going,
you just don't know how you get there
so just say a prayer.
and hold on, cause there's good who love God,
life is not a snapshot, it might take a little time,
but you'll see the bigger picture
Would dare you, would you dare, to believe,
that you still have a reason to sing,
'cause the pain you've been feeling,
can't compare to the joy that's coming
so hold on, you got to wait for the light
press on, just fight the good fight
because the pain you've been feeling,
it's just the dark before the morning
yeah, yeah,
before the morning,
yeah, yeah
Once you feel the way of glory,
all your pain will fade to memory
once you feel the way of glory,
all your pain will fade to memory
memory, memory, yeah
Would dare you, would you dare, to believe,
that you still have a reason to sing,
'cause the pain you've been feeling,
can't compare to the joy that's coming
come on, you got to wait for the light
press on, just fight the good fight
because the pain you've been feeling,
it's just the hurt before the healing
the pain you've been feeling,
just the dark before the morning
before the morning, yeah, yeah
before the morning"
I highly recommend that book!
I also just read Miracles by Terri Blackstock. I absolutely love her books! The book is about this man who is a pew filler in church. His wife is really active in the church but he isn't. One Sunday the sermon is about how a shepard goes after even just one lost sheep and how we should look to save one soul at a time. Even saving one soul will have the heavens rejoicing. The man didn't know that's what the sermon was about because he wasn't listening as usual. But that night, he has a dream. The dream is about a women looking for a coin in her tiny room. She tore everything apart to find it. Once she found it she weeped with joy. He woke up wondering why she was so excited to find a little coin. He remembered the sermon earlier that day and tried to go back to sleep. Buy then a voice said "ephphatha". It freaked him out so he got up. To make a long story short, he find out that now he can hear peoples spiritual needs. He thought he was going crazy so he went to the preacher at his church to complain about his "curse". The preacher finally convinces him that it is a gift. The preacher takes him to a diner that they go to everyday. The preachers asks what he's hearing. As they go through out the day, they both see how many people will come to Christ once they know who Christ is. Christ is different things to different people because of where each of us are at in our lives. If they heard someone say to themselves "I'm so alone. No one even knows I'm alive", then they would go up to them and tell them how Christ never leaves or forsakes us. If someone said "if only I could rest I could do fine", they would talk to them about how Jesus said "come to me all you who are weary and burdened and I will give you rest". Just by doing these simple things, they led more people than they could count to Christ. They got their church doing it too just by going to talk to people and seeing what they needed. After 2 amazing weeks of being able to hear peoples needs, this man looses the ability to hear the needs. He thinks his life is over and is convinced that he can't lead others to Christ anymore. But his friends remind him that they never had the ability to hear needs. They simply talked to people. Finally he understood that he could still do it.
This was one of my favorite books ever! I recommend it too!!
So yesterday during class our lesson was about the SAME thing. These were the verses we read.
"One of the teachers of the law came and heard them debating. Noticing that Jesus had given them a good answer, he asked him, "Of all the commandments, which is the most important?"
"The most important one," answered Jesus, "is this: 'Hear, O Israel, the Lord our God, the Lord is one.Love the Lord your God with all your heart and with all your soul and with all your mind and with all your strength.'The second is this: 'Love your neighbor as yourself.'There is no commandment greater than these." Mark 12:28-31
My youth minister talked about how when Jesus was asked that question, he answered it with something familiar that they already knew about. They had heard that from Moses so Jesus came to where they were to explain it.
That is what we should do. We all want to have the answers to be able to tell others about Jesus but we have to understand that just like Jesus meets us where we are, we need to meet others where they are. It's incredible what will happen when we start actually doing that.
There was a lady at the clinic who was telling me how she notices that missionaries and the church are picking up other peoples slack. She said she's not religious but that she's amazed at what the church is doing. She also began to tell me how lonely her sickness has been and everything. I then mentioned how great it is to have such a wonderful church family who is there for you and helps you every step of the way. She said how cool that was and that she might start looking into Christ and the church because she needs someone to be there for her. All you have to do is find out peoples needs and address them, just like Christ has done for us.

Few more pictures

There is an update coming soon but here are some pictures from Tahoe.

Thursday, May 20, 2010

The pulse- ox lies

We made it home late Saturday night! We got home and I didn't go to sleep until 4:30 which made getting up hard. But I went to church and did things all day! It was great!
Since I've been home, I have not been sleeping well at all. I itch like crazy from my liver problems and nothing helps. Since it's not an allergic reaction or anything, Benedryl doesn't work. I've just been exhausted from not sleeping well.
I forgot to tell this story so here it goes! My doctor in Nevada wanted to watch my heart rate on the monitor because it was jumping all over the place. We were in there for quite a while so we were just talking. He always jokes about me having a boyfriend and that that is why my heart rate is so high. I don't have a boyfriend so it's a joke. Well my pulse was up to 130 and he says watch this the pulse-ox never lies. So he asked me if I have a boyfriend and as soon as he asked me, my heart stopped for a second!! It was hilarious! He said it was the funniest thing he's ever seen! We laughed for a long time after that!
We re-scheduled our trip to Brazil! We plan on going on June 15th. Hopefully everything will work out.
I will update more once I get more sleep.

Thursday, May 13, 2010

5/13/10 update

Yesterday was an eventful day! We decided that we can't go to Brazil next Friday because our visa paperwork to get in the country is having problems and my doctor says I can only go if we can take all my heart medicines with us. We are trying to figure out how to get the medicines in the country without them being taken by customs. We are looking at going in a few weeks hopefully.
I did homecare in the morning before the major auto-hem. During the auto-hem I got another clot in my port. It was great fun. So that took a while.
We were scheduled to meet with the doctor at 2. We finally met with him at 4 or so. We went through all my blood work. My platelets are better but still in the low normal range so he said we just need to watch it really carefully.
My cholesterol is high for some reason so he is putting me on some medicine to help that.
I told him how my fingers and toes turn purple and blue and green sometimes. Sunday during church I looked down and my left hand was all purple and green. He said that that means that I probably have Raynauds disease. I don't know a lot about that but it had to do with circulation. I don't remember the connection but that also means that I am likely to develop auto immune diseases. Lyme can cause those. When we mentioned that my concentration is zero and that I have lots of brain fog and confusion, he said that I really need to get stable so that we can try to stop the Lyme in my brain and make sure I don't get auto immune diseases. That means that I have to come back here once I'm stable.
He is sending me home with the heart meds that I have to take everyday either through my port or a shot. I'm also being sent home with homeopathic pain medicine called an arthritis push that we can put in my port or a shot.
This morning I had a TON of testing. We were testing a bunch of medications I will be taking home. Oh my. I thought I was taking a lot of medicine before I came here...ha. My colon, small intestines, kidney, liver, stomach, lymphatic system, skin, and throat are all infected and messed up. Not what we were hoping to hear. So, at home I have this huge list of detox things to do. Once I start it, I will post more about that because I'm still not sure what it is.
After testing I did homecare. Then I did a detox IV. I'm really frustrated with the nurses because 4 out of the 5 days they have to reaccess my port because of some problem. Today he "missed" my port and had to do it again. What in the world?! How do you MISS my port? It's RIGHT THERE. Good grief. After my IV I got my butt shots. Then I had a dark field. That's the thing where they take a drop of my blood and put it under the microscope to see what's going on. There is no Lyme in my blood! Praise God! It showed I'm fighting lots of viruses and allergies and some yeast infections. Nothing too bad showed up on there which is great! It was a long day!!!
Tomorrow is my last day at the clinic! I'm so so excited!!!!!
Here are the shots I take everyday.
Allergy shot (arm shot)
Food allergy shot (arm shot)
Either Glyoxal shot (butt shot) or Placenta shot (we switch off days with these)
Amitripyline desensitization shot (arm shot)
Heart medicine shot (arm shot)
And lucky me I get to take medical food every day...(mixed like a protein shake)
Once I get the LONG list of other medicines I am on, I will share that too! It will take a while to figure out a routine with everything.
I get to come home in 2 days!!!!!!!!!
Tomorrow afternoon after the clinic we are planning on going to Tahoe again for a couple hours and then come to the hotel to pack. Then Saturday night I will be HOME! :)

THANK YOU for your continual prayers and encouragement!!

Wednesday, May 12, 2010

5/12/10 update

First, some pictures!

Take 1-Robbin Dutton and I at the clinic in Nevada. Haha thanks Gene for holding my blood in the picture...

Take 2- much better!

You probably don't want to see this but I'm showing you anyway! You can see chunks of blood going in...

There has been SO much going on. On Saturday, I was looking at my blood work for the week and I noticed that my platelets are low. That is why I am bruising so easily. Sunday we went to church and hung out at the hotel. Monday I did another major auto-hem. Everyday before I do anything, I have to do homecare. That is the treatment where you make your own medicine with your blood. That is so time consuming. It takes around 45 minutes to an hour. So yesterday I got to the clinic, did my homecare, then did the major auto-hem. It went well! That one also takes so long. After the auto-hem they had to test me on some nutritional supplements. My body is not absorbing nutrients like it should be. He wants me to start having this medical food shake everyday. They are so encouraging by saying "oh this smells so good! Good choice in flavor"! Have they ever actually tasted this stuff? It's nasty. Anything with the word "medical" or "healthy" is gross. I got so inpatient by the end of the day yesterday.

The clinic here doesn't know what the word time means. It drives me crazy because I hate being late. If you know me, you know that I love to be early and on schedule. Well here there is no concept on time. Patience is one of the fruits of the Spirit. We all want to be patient. Never ask God for patience if you aren't ready to be tested. Right now I am NOT patient. It's making me crazy!!! So many things come up that take more time and there is no schedule because it's the medical world. If you have never lived in the medical world, count yourself lucky! But, living in the medical world does mean that you learn to actually focus on the moment like Christ says to do. When you're sick, you have to focus on what is going on right then. You can't plan ahead. And by ahead I mean 1 hour ahead because everything changes. You learn to live hour by hour because things change unbelievably fast. It's something you can't explain if you haven't lived it.
"Give your entire attention to what God is doing right now, and don't get worked up about what may or may not happen tomorrow. God will help you deal with whatever hard things come up when the time comes" Matthew 6:33-34 (the Message)

I am completely off my sleep medicine which means I'm not sleeping well. That's always a bummer! For some reason on this trip, I have bumps all over me that itch so badly. I'm taking as much benedryl as I can but nothing seems to help. It's worse at night which keeps me up also.

Yesterday morning (Tuesday), I woke up with a nice bruise on my face. I knew sleep and I were in a fight but I didn't know how bad it was!

Monday night at 10 I had to start fasting for my blood draw. I was scheduled to have my blood draw at 9:30 yesterday morning. 9:30 turned into 11:30. Let's just say I wasn't in a great mood. We got to go eat after that though! Then I came back to have some medicines tested. We are trying to desensitize my sleep medicine so I can take it! So they had to test my levels. First, they put the different levels on a machine and somehow test me on them. Once they think they have found my levels, they skin test me. That means that they give you a little of the medicine in a shot right under your skin and see if you have a reaction. I got a headache on the first one so we tried another one. That one was fine! Now I have to take the full shot of that medicine and see if I have a reaction. If I don't, then they make me more shots and I take those everyday. It's a long process but will be so worth it!

Tomorrow (well technically today but oh my goodness I haven't even been to sleep yet) I will have another major auto-hem. We also meet with my doctor to discuss how everything is going. It will be a long day! I will update again after my appointment!

Tuesday, May 11, 2010

Savior, He can move the mountains, my God is mighty to save, He is mighty to save!

Lake Tahoe was so pretty! There was snow around it which made it beautiful. The weather was actually warm so we sat out on a beach for a while! Here are some pictures!

"I look up to the mountains; does my strength come from mountains?
No, my strength comes from God,
who made heaven, and earth, and mountains." Psalm 121:1-2

This is the beach we sat on!

"For since the creation of the world God's invisible qualities—his eternal power and divine nature—have been clearly seen, being understood from what has been made, so that men are without excuse." Romans 1:20

Mighty to Save by Hillsong

Everyone needs compassion,
Love that's never failing;
Let mercy fall on me.

Everyone needs forgiveness,
The kindness of a Saviour;
The Hope of nations.

Saviour, He can move the mountains,
My God is Mighty to save,
He is Mighty to save.

Forever, Author of salvation,
He rose and conquered the grave,
Jesus conquered the grave.

So take me as You find me,
All my fears and failures,
Fill my life again.

I give my life to follow
Everything I believe in,
Now I surrender.

My Saviour, He can move the mountains,
My God is Mighty to save,
He is Mighty to save.
Forever, Author of salvation,
He rose and conquered the grave,
Jesus conquered the grave.

Shine your light and let the whole world see,
We're singing for the glory of the risen King...Jesus (x2)

My Saviour, He can move the mountains,
My God is Mighty to save,
He is Mighty to save.
Forever, Author of salvation,
He rose and conquered the grave,
Jesus conquered the grave.

My Saviour, you can move the mountains,
You are mighty to save,
You are mighty to save.
Forever, Author of Salvation,
You rose and conquered the grave,
Yes you conquered the grave

I'm working on a medical update that I will post tonight or tomorrow. I'm sorry I haven't updated more. It's been crazy!!

Friday, May 7, 2010

That was really scary!!!!

Yesterday seemed so long! I didn't even do very much. I just did an IV and shots. I forgot what I got! haha all the days run together.

There is so much going on today! The first thing I did this morning was something called homecare. Homecare is where you prick your finger, get .1 ccs of blood with a syringe, then make your own medicine. You get tested on a level and find out how many bottles you need to use. Each bottle has a solution in it. Once the blood is in the first bottle, you shake the bottle for 25 seconds. Then you take .5 ccs out of the bottle with a syringe and put it in the next bottle and shake that one for 25 seconds. You continue this until you reach the last bottle. For me, I do 35 bottles. Once I shake the 35 bottles, I take out 1cc and give myself a shot using that medicine. The purpose is that it takes your symptoms right then, like a headache or cold, and once you mix them in the bottles, it levels everything out. So once you give yourself the shot of the finished product, it will teach your other cells what to do to get rid of the symptom. It's really cool! Apparently you are not supposed to eat while you do it. You can't even drink water because then the medicine might not work for you. Well I ate and drank today. So what did I get to do?! Do it all AGAIN. 4 finger pricks and 1 shot later I was done... You usually do homecare once a week but if you are sick you can do it everyday.

We also found out that my throat is swollen and infected. That is why it hurts so much! I have such back allergies right now.

Now I am doing the Major Auto-Hem. They accessed my port, and took the 4 pints of blood out. They put it through the machines to clean it and then all the sudden my port got a clot in it. The nurses starting panicking because we have to get the blood back in me fast. He worked on my port and blood went everywhere. He tried starting an IV in my arm but decided to keep trying my port. So he deaccessed my port and then reaccessed again. That means putting another huge needle in. Now everything is okay! I look like I've had surgery though. There is blood all over me! It was really scary for a while!!!

With the auto-hem you don't get any shots so that's exciting! I'm supposed to do this 4 more times while I'm here.

Tomorrow we are going to try to go to lake Tahoe! I have some pictures from the clinic to post later.

I hope you have a great weekend!

Wednesday, May 5, 2010

Major Auto-Hem Procedure and Pictures!

The auto-hem procedure took over 6 hours because of some complications. Well when they accessed my port, they had to use a 2 inch, thick needle so that the blood wouldn't clot during the procedure. He was a little nervous using my port because a clot would be horrible. Then they took out the blood and put it through the machines and UV light. We had a little trouble with getting the blood back in me, but it finally worked. Next they switched my IV to hydrogen peroxide. At first it was going so fast and I came so close to throwing up from the taste. It also makes you smell like rotten eggs. It's so gross. So they slowed it down. Ten minutes later I started having a reaction. I felt my heart rate go up really high. I started coughing and almost threw up. Then I almost passed out. People started standing over me and asking all these questions and ran to talk to the doctor. He stopped that IV and started me on a detox IV to flush it out. It took a long time for me to feel better. So everything took over 6 hours.

I'm supposed to do the auto-hem every other day. I'm not excited for that. Today my legs have hurt so bad. We think it's from the vitamin C IV because when you have vitamin C in that high of dose, it acts like an antibiotic which means it kills bacteria which causes a herx reaction. That's what the hydrogen peroxide does too.

They monitor my pulse closely all the time. This afternoon I started getting a cold or allergies so that's fun. Something else I noticed was that it looks like my port has moved over a little. We will show the doctor tomorrow and see what he says.

Here are pictures of different things!
People are asking me questions so if you have any questions about anything please ask and I will answer them on here!

The view out of our hotel window
Our room

Major auto-hem

there is so much on that cart!

Here is my blood. Notice how black it is. That is not good. It's supposed to be red ish. When they put ozone in it, it makes it turn the right color!

Just driving around

I hope you are having a great week!

"The LORD is my strength and my shield; my heart trusts in him, and I am helped. My heart leaps for joy and I will give thanks to him in song." Psalm 28:7

Crazy day!

Today was a very long day! After they took the 10 vials of blood, my arm started swelling up and hurting so bad. It's all red so they put lots of cream on it and have my whole arm all wrapped up. We met with my doctor and discussed lots of things. For over 5 months, I have had this rash that is on my stomach and back. We haven't thought anything about it since I get rashes all the time. Today we showed the doctor...he said that the kind of rash I have means that my liver isn't working properly. Great. We aren't sure what that means yet exactly. They accessed my port and started my vitamin C IV. I started feeling bad so they slowed it down. I continued to not feel well so the doctor ordered for it to be stopped. They switched me to a detox IV to get the vitamin C IV out of my system.

Tomorrow I'm scheduled to do the auto-hem procedure. That is where they take out so much blood, put ozone in it, run it through a UV light, then put it back in your body. Then they do an IV of hydrogen peroxide. The whole thing takes about 4 hours. Last time I had this, I had a very scary reaction to it. But the doctor said I need to have it done. Hopefully everything will go well.

This weekend was amazing. We had so much fun! The theme was Just As I Am, focusing on how God takes us just as we are. One of my favorite things was Sunday morning. Okay, I had not planned to climb the mountains. Saturday there were several activities on the mountains but I did not go. Saturday night the water in the girls cabins went out. It was pretty funny actually. Everyone freaked out. So Sunday morning there was a sunrise hike. I decided I was going to do it. I woke up at 5 only to find that the water wasn't back on. We ran in the dark to the mess hall to brush our teeth. At 6am we started the climb. I took my time and was the last one to the top, but I didn't care at all. I struggled all the way up. It was painful, tiring, and frustrating. But I made it. I climbed the mountain. (okay not really a mountain but a hill...) The sunrise was great!! I'm so glad I got to do that.
I will update more tomorrow!

Tuesday, May 4, 2010

We are at the clinic

We made it to Reno late last night. At the Dallas airport only 1 runway was open because of the 50 mph winds. It was a mess and the flights were so bumpy!! But we are here! I have been fasting since last night for blood tests. They just took 10 vials of blood! They also tested me on IV ingredients and we are next to see the doctor. They got us in to see the doctor really fast which is good. After we eat lunch they will access my port and start my IVs. I've never had anyone besides my home nurse and my mom access my port before. I'm a little nervous but it will be fine! That's all that has happened so far! The Duttons are here so we have been talking to them which has been fun!

This might be my new favorite song! You are good by Nichole Nordeman

When the sun starts to rise
And I open my eyes
You are good, so good
In the heat of the day
With each stone that I lay
You are good, so good

With ever breath I take in
I'll tell you I'm grateful again
When the moon climbs high
Before each kiss goodnight
You are good

When the road starts to turn
Around each bend I've learned
You are good so good
And when somebody's hand
Holds me up helps me stand
You are so good

With every breath I take in
I'll tell You I'm grateful again
'Cause its more than enough
Just to know I am loved
And You are good

So how can I thank You
What can I bring
What can these poor hands
Lay at the feet of a King
I'll sing You a love song
It's all that I have
To tell You I'm grateful
For holding my life in Your Hands

When it's dark and it's cold
And I can't feel my soul
You are so good
When the world is gone gray
And the rain's here to stay
You are still good

So with every breath I take in
I'll tell You I am grateful again
And the storm my swell
Even then it's well and You are good

Monday, May 3, 2010

Quartz Mountain Retreat!

The retreat this weekend was so much fun!! Here are a few pictures from it. I will update more in the next couple days!

Today I am leaving for Nevada so I will be updating a lot.