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Monday, January 24, 2011

Lyme Disease in Oklahoma

I'm working on an update to post. I had to go to the hosptial on Saturday night and I'm really sick but I'll try and post soon.
This weekend we saw that the Oklahoma State Department of Health changed their info about Lyme Disease. They just hired a new director, so maybe this will change things. You can read the article here.
This is what my dad said about it on facebook.
"Great news! After years of fighting with doctors and health "professionals" about our daughter's diagnosis of Lyme Disease because "it doesn't exist in Oklahoma," the OSDH now says it does! Docs who treat late stage Lyme have been run out of practice and out of Oklahoma - so we STILL have to leave the state to get care from experienced, knowledgable Lyme docs. But this is a victory for those suffering this terrible disease!"
In the article it says, "However, other evidence suggests that it could be possible to get Lyme disease in Oklahoma".
They are starting to see the light! So now, if any doctor here tells me that it's in my head and that I can't have Lyme, we can show them this article and they can't deny me. I want to go to all the doctors who have been so rude to me and just show them this. Maybe all we're doing to bring awareness is actually getting somewhere.

13 comments:

  1. i live in oklahoma and i think i may have lyme disease from the symptoms chart.. im going to call a dr tomorrow but don't know where to begin..

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  2. I have been diagnosed with Lymes just before thanks-giving. I am going thru the 3 weeks of antibiotics, the D3-50,000 unit pills weekly. I asked for the test and my primary granted my request. I have been back to Oklahoma 5 yrs. I was bit the first yr. back here and have been untreated all these yr. I am having the whole gammit of symptoms including severe central nervous system symptoms. My MRI report suggest Lymes and yet all my doctors never checked into it. I don't know where to go from here as I am hearing and reading the horror stories about no help in Oklahoma and I am on disability as it is with the after effects of Mercury poisoning spinal deg. osteo-arthritis, fibromyalgia etc. I am 52.

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  3. Dr's In Oklahoma are a joke. I have thousands of $'s in bills and no help to show for it. They know nothing about CFS/ME or Lyme. They will send you to a different specialist for every symptom you have. Truly greedy idiots. I have no life thanks to them and losing everything.

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  4. I am 37 years old and live in rural southeastern Oklahoma. I was diagnosed with lymes in July along with other co-infections. My doctor at the Choctaw hospital where I worked as a nurse diagnosed me. He has worked in Chicago and he has been a great doctor. I'm not sure how long I may have had this disease, but I became most severely ill in July. I haven't worked since August. I think my doctor may have gone as far as he can, even with all the research he's tried to do on his own. There are several others that work where I do that have been diagnosed recently. I don't know what to do now or where to go. Mostly, even through the pain, I wish I had someone to talk to. Especially during my periods of insomnia. I would love to talk some day. Not many people know the nightmare you and your family goes through. Praying for you.

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  5. I too live in SE OK and the blood test came back pos for RMSF last month, but my Primary Doc thinks I have lyme because I have many additional symptoms..... After 20 days of Doxy, still sick. Been waiting over a week for second set of blood tests ( no word yet). Seems like lyme disease is taboo! Maybe why have not heard from Doc.? All my searches on internet for lyme lit dr in ok come up - dead end. WTH it's going on here - I think maybe big time.....

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  6. ps I hope you are getting the help you need and feeling better, especially since you should be enjoying your young years (I am 51). God it's hard to type isn't it?

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  7. I am 41 and have had a recent diagnosis of chronic lyme complex. I see Tricia Butner ARNP in Seminole Ok. After many visits to doctors and specialist for so many symptoms and much praying about answers the lord led me to believe it was all under one umbrella. I decided to seek help from a doc that would look at the whole picture of the many things happening to me. I was expecting her to send me to a neurologist and I was beginning to think I had M.S. Or Fibro. She listened to me and said right away "I believe we are dealing with Lyme". She wanted me to test through a private lab called Igenex because they would be more thourough and look at more strains than the test the CDC uses. Both set of tests came back positive and so it automatically reported to the CDC. Hopefully they will start giving more recognition to this disease in Oklahoma. I had to get it here, I have not traveled out of state since the onset of symptoms a few years ago and I do not remember dealing with a bite or a rash so idk where it came from but I have it. I am trying to decide on oral antibiotics or intravenous. I am worried about financial costs and missed work. I am grateful though to have had Butner as a physician because she knows what she is talking about.

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    1. I know this was over 2 years ago, but I'm just reading. How are you doing now? I was just recently diagnosed and now looking for an LLMD. I finally got a list from ILADS and Tricia Butner was on it. How long did it take you to get an appt? I need my life back!

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    2. I know this was over 2 years ago, but I'm just reading. How are you doing now? I was just recently diagnosed and now looking for an LLMD. I finally got a list from ILADS and Tricia Butner was on it. How long did it take you to get an appt? I need my life back!

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    3. LynnRN, my son has an appt with Tricia Butner on Wed. If you have not already got an appt with her, I want to tell you that I myself tried a year ago yo get into her, but had a hard time getting anyone to return calls and then was finally told she was not taking new patients. Now, for my son, my husband bugged the daylights out of her office until they have agreed to see him. I can let you know after our visit with her Wednesday what we think of her. Pretty sure our boy has some form of tick disease. She should at least get to the bottom o his issues... Finally. As for me, God led me to Ronald T. Wilson in Denton TX. I have three tick diseases. He is very knowledgeable and is helping me, but it is taking time... And money. Insurance often won't cover the cost due to political issues. If you look for him online, you'll find his number but reviews are mostly for when he was a gynecologist. He came out of retirement from that to solely focus on tick diseases. Very literate but tries hard to fly under the radar of the Texas Medical Board, so not much online about him regarding tick treatment unless you join Lyme literate forums. I like him enough and am getting relief enough that I would take my son to him but he doesn't do pediatric level. Anyway, I hope you are finding answers and doing ok.

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  8. Thank you. I might have Lymes disease but it sure from the labcorp western blot since it is CDC standards. I need a doc that will use the IGeneX western blot. Let us know how dr Butner goes. I live in north Dallas so either Wilson or Butner would be better. When you called Tricia Butner office did you tell them all about you situation with Lyme right up front? She is. CNP not an MD. Wishing you well

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    1. Hi, this post is from many years ago. But she went back to school and I think is an MD now but I only saw her a couple of times. I've sent many people to her. And yes just say Lyme. I hope you can see her!!!

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