Monday, January 11, 2010

The faithful one

My appointment with the pain management team went good. I really didn't want to go because I'm tired of appointments. Having to catch up every single doctor every single time is tiring.
I went up on the dose of Amitriptiline to 150mg every night. They said this is the highest I can go unless I really need to go up more but then I can only go up to 200mg.
I told them that I've been having a lot more migraines lately and they reminded me how unique this disease is. Everyday it attacks different parts of you. It changes constantly and there is no possible way to know what I will feel like. It also changes in the middle of the day.
Yesterday when I woke up to go to church I was so jittery and felt so spastic. During church I just crashed. I don't know why, that's just how my body reacted that day.
I've been able to babysit for our missionaries from Brazil. It's been great! On Saturday our campaign that went to Brazil in 2007 got together which was so much fun!
Robbin Dutton (Missionary from Brazil) has Lyme and MS. A few years ago my mom went with her to Nevada while she was being treated at the clinic there because your too sick to go alone. Robbin is doing great and only has to go to the clinic every couple years I think. That is how we got connected with the clinic in Reno. There is something called muscle testing which shows if your body is allergic to something at that time. Everyday is different. Look muscle testing up. It's really cool! Robbin has been testing me on things we clean with, wash clothes with, my medicines, and everything I use. We found out I'm allergic to every soap we use and the shampoo I use and tons of other stuff. She said that when we find products I'm not allergic to, it will make such a different. My body is so sensitive to smells and everything.
This weekend my youth group and I are going to something called Winterfest in Arlington, Texas. It's a program that has 4000-5000 teens worshiping together and doing various things. It is one of the best trips that we take. They bring in speakers, college performing groups, and have some amazing testimonies. I am going and am praying that I will be okay. Please pray that I can make it all weekend.
Thursday I'm going to another new doctor that specializes in thyroids and adrenal glands. He will probably run lots of tests and everything.

This song is called Faithful One by Selah
"I find no hope within to call my own
For I am frail of heart, my strength is gone
But deep within my soul is rising up a song
Here in the comfort of the faithful one

I walk a narrow road through valleys deep
In search of higher ground, on mountains steep
And though with feet unsure, I still keep pressing on.
For I am guided by the faithful one.

Faithful, faithful to the end,
My true and precious friend,
You have been faithful,
Faithful, so faithful to me

I see your wounded hands, I touch your side
With thorns upon your brow you bled and died
But there's an empty tomb, a love for all who come
And give their hearts to you, the faithful one.

Faithful, faithful to the end,
My true and precious friend,
You have been faithful,
Faithful, so faithful to me

And when the day is dawned and when the race is run
I will bow down before God's only Son
And I will lift my hands in praise for all you've done
And I will worship you, my faithful one"


  1. I'll be interested to hear how things go with the endocrinologist. He used to work in the same office as my endocrinologist and I saw him once when she got called out unexpectedly. Hopefully he'll be able to give you some helpful answers.

  2. Lord please continue to be with Victoria and her family. Thank you for all the strength you have given to this family. If it's your will allow Victoria to attend Winterfest. I know it would be so uplifting to her, but Lord you know what's best for us, even if we don't understand. Amen