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Thursday, June 18, 2009

Last night I started having an allergic reaction to the dressing on my PICC line. When I woke up this morning the rash on my arm was worse. We got to the clinic this morning and I had another Major Auto-Hem. Everything went fine! They did a liver detox IV instead of the hydrogen peroxide. When we were leaving for lunch they had to flush my PICC line with saline and heparin. Right after the nurse flushed it, everything got quiet and I got dizzy and almost passed out. We made it to lunch around 2:30. When we got back they had to change my PICC line dressing again because of the allergic reaction. At 3:30 we had an appointment with the doctor. We decided that I am going to start the push tomorrow. In the morning I will get a placenta IV. It helps support the immune system and helps to create stem cells. Then in the afternoon I will get my 3 shots. The last one is called the push. The push is a shot that goes in a vein in your arm. It kills the Lyme bacteria and creates an immune response to the Lyme bacteria so that the immune system will start fighting the Lyme. This treatment is also called the "shake and bake". About 45 minutes after you get the push you start reacting. First, it feels like ice is running through your veins and there is a deep pain inside of you. Next, you start shaking. Its like your having a seizure. That can last up to a few hours. When that finally stops your fever starts to rise really fast. Mine has gotten up to 103 from this treatment. Also, pain and weakness start to hit. You really can't eat or drink anything or you will be sick from shaking so bad. The doctor wants all of this to run for 6 hours without any kind of medicine. Six hours of all that is a long time. If you really can't handle it anymore you can get in a bath of apple-cider vinegar. The vinegar pulls out the medicine and stops the reaction. It only stops the shaking though. The fever and pain are still there. Everyday the doctor encourages you to go up a step on the push. That means a stronger reaction.. Tomorrow I shouldn't have a bad reaction since it's the lowest dose. Tomorrow I am also having an EKG. My heart has been skipping beats a lot, so the doctor wants to make sure everything is ok. Later, I might have some immune system testing done. The doctor thinks mine isn't working right now. My adrenal glands are not working either. We will be trying to get everything working again through detoxing and the push. The doctor is concerned at how much weight I've lost. He isn't going to do anything about that yet.


The weather here is so nice so we might try to drive to Lake Tahoe this weekend! It's only about 30 minutes away from here. I hope you have a great weekend!

You can see a little of the rash around my PICC line. The picture really doesn't show it...

"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

3 comments:

  1. I had to not only use a special dressing on my picc line, but also had to not use the cleaning solution from the dressing changes. We could *only* use the alcohol from it. If we used anything else, I had major problems.

    If you go to my fb pictures on my fb profile, you'll see an album called PICC and there you can see the two of the three types of dressing I had. The first two gave me major problems and the third (which is what I mostly wore in my pictures ....) was the one that gave me the most relief. Just a FYI.

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  2. Good luck today sweetie; I'm praying for no reactions! Always thinking of you and love ya lots,
    Janet

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  3. Victoria - I got on line to check how things are going for you and your mom. I am glad at least the weather is nice. You are missing some REALLY hot days here so you can be thankful for that. I am so sorry that you are having to go through so much but I pray that this you are able to make it through the treatment with your head up and knowing that there are a lot of people here who care about you. Keep us posted. Love, Zina

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