Public Facebook Page

https://www.facebook.com/Finding-God-in-the-Midst-of-Your-Storm-Victorias-Fight-With-Lyme-Disease-823182307797182/timeline/?ref=aymt_homepage_panel

Wednesday, January 26, 2011

Update 1/26/11

I forgot to mention that last week we decided that there's no way I can graduate. My mom has to go up to the school and sign papers to remove me. I'll just have to get my GED. With 2 major surgeries and 6 weeks of recovery for both, so many ER visits, hospitalizations, and just being sick this semester, I just can't finish school. I'll post about it later.
Monday I had an appointment with the gynecologist. We thought I was going to start the injections (Lupron) that would shut everything down, but he doesn't want to do that anymore. He said that that will take too long to start working. Right after surgery, I had asked his nurse if by waiting this long, it would give the cysts and endometriosis a chance to come back, and she said no. Well obviously she was wrong. I can't believe this is happening again. The ruptured cyst makes my legs, abdomen, and back hurt. He said I have fever because of the internal bleeding and inflammation. So I feel extremely terrible. We asked how long it will take for the pain to get better and for the internal bleeding to go away and he said two weeks. I don't understand how with my surgery, he said that he would have done emergency surgery even if I would have just had one of the problems I did (which a ruptured cyst was one of them), and now he tells me to just wait and deal with it. I'm on SO much pain medicine, and it doesn't help. Between Percocet, Loritab, and a strong anti-inflammatory, you would think that I would not be in pain, but that's not the case. I cry a lot of the day because I hurt so much. And it's not like I'm a wimp who can't handle pain. I have such a high pain tolerance, even the surgeon said that after my surgery. I've thought about taking myself to the ER again multiple times a day and demand to be admitted. I haven't really eaten since Friday night because I'm nauseous and I just feel too bad. I eat a little here and there but not much.
So today I had an ultrasound. I really don't know why, I just know that it hurt a lot. And of course insurance wouldn't cover it, so we had to pay full price.
What is the plan now? I have no idea. I guess just trying to keep me comfortable. I'm sure it will get better soon. If not, surgery is sounding really good about now because at least there would be an end in sight. Last time I checked, internal bleeding was NOT a good thing and there was no "let's just wait and see". It was an emergency situation and needed attention IMMEDIATELY. I just don't understand why I'm allowed to lay here and cry in pain from internal bleeding and be told to wait it out. My stomach and pelvis are full of fluid and blood, that doesn't seem okay to me. It doesn't make sense.
We'll see how the next few days go.

3 comments:

  1. Oh Victoria, I'm so sorry! It sounds awful! I can tell your spirits are really down.

    I created a Yahoo account & sent you an email - thanks for your comment.

    Praying for you xxx

    ReplyDelete
  2. I don't see how any of this could be worse. You need to stop being so brave. You and your good attitude are making the rest of us look bad. If I was you, I would curl up in a ball, and cry. and cry. and demand all my favorite foods. Even if I couldn't eat them, I would make someone else eat them and tell me what it was like.
    I bet your parents are going nuts. No one wants to see such a sweet, strong, FAITHFUL lady get picked on like you are. If we could see and touch this disease there would be a long line of people wanting to punch it in the face for you.
    We love you!!! And we don't understand why it's happening either. But we are with you, on your and God's side! Love-Jill

    ReplyDelete
  3. You are right. It's not ok that you lie around in pain. The best option is the surgery? Let's do it.

    ReplyDelete