I had a good weekend. A couple of my friends came over and I got to go to church yesterday. I hadn't been to church is 2 weeks so it was great to get to go!
Today I had a follow up appointment with the surgeon. He said my incisions are healing well. I told him it still hurts a lot and he said since I'm in pain, from the Lyme everyday, that it will just take me longer to heal from surgery.
Tomorrow I have an appointment with a new sleep doctor. I don't know what that's for. Right now I have so many doctors. I have a Lyme doctor in Nevada, a Lyme doctor in Seminole, a pain management team at Children's Hospital, a surgeon at Edmond Hospital, my primary care, a sleep doctor, and home nurses. That's 7 different groups to keep up with. It's crazy right now.
We're trying to figure out what to do about my port because the surgeon and home care group keep telling us different things. The surgeon says that my mom can learn how to access my port at home. That's the whole reason I got the port put in. The home care group says that my mom can't do that, a nurse has to. So we're trying to figure out what to believe and do about it. I haven't been able to do an IV in 2 weeks which makes me feel worse.
School is so hard. I haven't done any since I had surgery. I learned a whole bunch of new things in algebra before my surgery and now I have forgotten it since it's been so long. It's hard to figure out when to do my school work. Between all the appointments and everything it is stressful. At home, I'm either too sick to work on school, or I feel okay and need to get out of the house.
We're supposed to go to Disney World in Florida next Friday. I'm so excited because I will get to swim since my port is under the skin. It will be great to not have to go to any doctors appointments for a while. I'll have to be in a wheelchair everywhere we go down there. I will also have to do IVs when we're back at the hotel. The good part is that if your in a wheelchair you usually get to go to the front of the lines.